Friday, August 25, 2006

A good day in the NICU

All is well today.

Grayson weighs 5 lbs 1 oz and is taking 60-70 ccs every 3 hours. No heart rate drops and we are now on day 3 of his 5 day countdown.

Kaitlyn weighs 4 lbs 6 oz and she is getting to start eating again today after 10 days with nothing. She is going to start off slow, getting only 5 ccs every 3 hours.

Wednesday, August 23, 2006

Grayson's countdown and Kaitlyn's ileostomy

Grayson is on his third countdown to coming home posted He starts over today at day 1. He had two bradys yesterday. Dropped his heartrate to 55 and 67. Everyone tells me that he is waiting on Kaitlyn to come home with him.

Kaitlyn is doing better. Hopefully they will start feeding her again tomorrow. Last x-ray was clear with no signs of NEC. As soon as she reaches 5 lbs, she is 4 lbs 2 oz right now, and is on full feeds they will send her back to Children's to have her ileostomy put back together

For those who don't know, an ileostomy is a surgically created opening in the small intestine, usually at the end of the ileum. The intestine is brought through the abdominal wall to form a stoma. Ileostomies may be temporary or permanent, and may involve removal of all or part of the entire colon.She has an ostomy bag over the "stoma" - the intestine which is outside of her body - and her stool goes into this bag. It is really no worse than a dirty diaper.

Monday, August 21, 2006

Kaityln Grace - 4 lbs 2 oz

Eric Grayson - 4 lbs 15 oz

Thursday, August 17, 2006

Grayson is not coming home Saturday. The earliest he could come home now would be Monday night. I am sad. :-(

Wednesday, August 16, 2006

Grayson may not be coming home Saturday. He had a heartrate drop this morning. He dropped from 160 to 55. I will talk to the doctor tomorrow to find out what they decide.

Kaitlyn looked good today. She is such a beautiful little girl. I will try to post more pictures of both of them soon. Her x-ray today was clear. No sign of NEC now!!!!

Tuesday, August 15, 2006

Good and Bad news

Good News - Grayson is coming home Saturday. This is so awesome

Bad News - Kaitlyn has NEC again. They have stopped feeding her for 10 days and she is back on IV fluids for at least 10 days. She has already been through so much. We have come to far to lose her now. I love you Kaitlyn!!!!

Thursday, August 10, 2006

Just wanted to give you an update. The babies are now 10.5 weeks old.

Grayson weighs 4 lbs 7.4 oz and is taking all his feeds by bottle. He is off his amonophylline and was moved to an open crib on Tuesday morning. I have been able to breastfeed him once a day and he is doing great with that.

Kaitlyn is still struggling. They changed her from breastmilk to Pregestimil about a week and a half ago. They seem to think that this will help her gain weight. As of this morning she weighs 3 lbs 5.6 oz. That is down from a high of 3 lbs 7 oz. They are slowly trying to reintroduce her to breastmilk. They have started letting me nurse her once per day with yesterday being the first time. She did great.She is such a little trooper and it breaks my heart to see her struggling like this.

Wednesday, August 2, 2006

9.5 weeks old today

Grayson weighs 4 lbs this morning and I get to try to breastfeed today

Kaitlyn weighs 2 lbs 15 oz and they are going to try her on a special prescription formula today. She is "dumping" - putting out more than she is taking in right now. They believe that this may be due to her NEC surgery and her ileostomy. Just pray that she starts gaining weight and growing. She has a strong will to survive and she is such a fighter. It hurts me to see her struggle so much.

She was NPO for 3 days and lost a few ounces. Kaitlyn is being fed 10 ccs every 3 hours. How can my baby girl grow like that? She loves her bottle and wolfs it down in just a few minutes. Then she looks around like "where is the rest of it mom?" It just makes me want to cry.

Grayson is getting 35 ccs every 3 hours. He is not too crazy about his bottle but will take it if he has to. The nurses say he has "lazy white boy syndrome". Tomorrow the lactation consultant is coming for his 5 o'clock feed and I am going to try and breastfeed him for the very first time. They took him off his amonophyline as of midnight last night. They say he may be in an open crib by the weekend with a target date of coming home in about 3 or 4 weeks.

I am so worried about Kaitlyn. She has struggled so much since she was born. It scares me, how little she still is.

Born Too Soon

Born Too Soon

Born Too Soon

Born Too Soon

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